This is heartbreaking, on so many levels.
I hope they can find out what happened, so others can learn from it - if she was non-compliant and died as a direct result, lives could be saved if she becomes a dire warning; if it was from something else, there are two issues - one, that we and our doctors must NEVER assume that all problems we have are caused by the DS, just as our docs used to slough off all of our complaints as being related to our obesity, and end up not treating an unrelated real illness, and also to make sure that people don't tag this as a DS-related death anyway.
And non-compliance to the point of TPN (IF that's what it was) must have a mental health component as well. There have been numerous cases of suicide in post-ops of ALL bariatric surgeries, when after having found the holy grail of losing weight, their lives didn't magically get better.
I hope they can find out what happened, so others can learn from it - if she was non-compliant and died as a direct result, lives could be saved if she becomes a dire warning; if it was from something else, there are two issues - one, that we and our doctors must NEVER assume that all problems we have are caused by the DS, just as our docs used to slough off all of our complaints as being related to our obesity, and end up not treating an unrelated real illness, and also to make sure that people don't tag this as a DS-related death anyway.
And non-compliance to the point of TPN (IF that's what it was) must have a mental health component as well. There have been numerous cases of suicide in post-ops of ALL bariatric surgeries, when after having found the holy grail of losing weight, their lives didn't magically get better.