So a lot has happened since I was here last. We moved from Fort Worth to Virginia Beach area to be closer to family. My mom wasn’t well. She was in the hospital once a month from July 2021 to her death December 2021. She was in rehab to gain her strength and they neglected her and failed to properly treat her congestive heart failure. Plus lied to my brother and me about the care she was getting. We were in there all the time but I have a lot of shoulda coulda wouldas about it all. It’s a mess and was devastating. I’m glad we got there and had time with her.
My brother has bought a new house with his new wife and they moved mom in with them (it was his wife’s idea) and then we also lived there until we closed on our new house. It was the first time we had lived under the same roof since my brother was a teenager. I know my mom was pleased with that. So I have been adjusting to living without her and having no parents at all. That’s been awful.
But watching her be so sick and seeing her autopsy report has made me so glad I had the DS. All her brothers had or have heart issues and congestive heart failure. Her father died young at 36 from a massive heart attack. Jim Crow was a big factor too because the white ambulance showed up but wouldn’t transport him to the white hospital nor to the “colored” hospital. So by the time the”colored” ambulance got there he was dead. My dad had diabetes and his brother had diabetes (my uncle died 9/21 too and we had just gotten back from his memorial and my mom went into the hospital again.) My brother has diabetes now too. He’s 46. These kind of genetics is hard to avoid but at least diabetes and high blood pressure isn’t a certainty.
We are doing okay. My weight has been okay. I seem to be having IBS diarrhea since my mom died and get diarrhea whenever I handle her estate, funeral, interment, visits to the lawyer, cry, or am feeling very sad and trying not to cry because it gives me diarrhea and then get it anyways! I have a medication for that too. Yet still have constipation. I got a new rare autoimmune disease called mastocytosis and am now taking a lot of medication for it! Way more than before the DS!! My GP is willing to do my bloodwork if I get my records sent to her but she wants me to see a bariatric surgeon to follow up with for maintaining my weight. So I am going to check him out.
Despite some of the losses, I’m so happy being near family and having support. We live in a great neighborhood and they are so friendly and neighborly. They have bbqs and Easter Egg hunts. My husband backed into the mailbox and was replacing it and a neighbor came by to help! My neighbor has chickens and has been giving eggs to me for next to nothing! One of the neighbor teenagers watches our kids when we go out on a date and I don’t trust anyone so that’s a big deal. My kids LOVE their uncle and auntie and their cousins. My husband and I celebrated our 23rd wedding anniversary in August and we dropped our kids off at their house while we went out! We have a little community here and I am pretty grateful.
But I need to get back on the straight and narrow because I have been eating whatever I want and am 167 and at the end of the day it’s 170 and I don’t like those numbers! I need to be at 160 or less just because I like those numbers! Anyways, I’m glad to be back’
My brother has bought a new house with his new wife and they moved mom in with them (it was his wife’s idea) and then we also lived there until we closed on our new house. It was the first time we had lived under the same roof since my brother was a teenager. I know my mom was pleased with that. So I have been adjusting to living without her and having no parents at all. That’s been awful.
But watching her be so sick and seeing her autopsy report has made me so glad I had the DS. All her brothers had or have heart issues and congestive heart failure. Her father died young at 36 from a massive heart attack. Jim Crow was a big factor too because the white ambulance showed up but wouldn’t transport him to the white hospital nor to the “colored” hospital. So by the time the”colored” ambulance got there he was dead. My dad had diabetes and his brother had diabetes (my uncle died 9/21 too and we had just gotten back from his memorial and my mom went into the hospital again.) My brother has diabetes now too. He’s 46. These kind of genetics is hard to avoid but at least diabetes and high blood pressure isn’t a certainty.
We are doing okay. My weight has been okay. I seem to be having IBS diarrhea since my mom died and get diarrhea whenever I handle her estate, funeral, interment, visits to the lawyer, cry, or am feeling very sad and trying not to cry because it gives me diarrhea and then get it anyways! I have a medication for that too. Yet still have constipation. I got a new rare autoimmune disease called mastocytosis and am now taking a lot of medication for it! Way more than before the DS!! My GP is willing to do my bloodwork if I get my records sent to her but she wants me to see a bariatric surgeon to follow up with for maintaining my weight. So I am going to check him out.
Despite some of the losses, I’m so happy being near family and having support. We live in a great neighborhood and they are so friendly and neighborly. They have bbqs and Easter Egg hunts. My husband backed into the mailbox and was replacing it and a neighbor came by to help! My neighbor has chickens and has been giving eggs to me for next to nothing! One of the neighbor teenagers watches our kids when we go out on a date and I don’t trust anyone so that’s a big deal. My kids LOVE their uncle and auntie and their cousins. My husband and I celebrated our 23rd wedding anniversary in August and we dropped our kids off at their house while we went out! We have a little community here and I am pretty grateful.
But I need to get back on the straight and narrow because I have been eating whatever I want and am 167 and at the end of the day it’s 170 and I don’t like those numbers! I need to be at 160 or less just because I like those numbers! Anyways, I’m glad to be back’
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