@Spiky Bugger Do you know what SNF? What room she is in? Maybe we could inquire about the name of the doctor and fax some information about the DS and give him/her some insight or better yet give the SNF to Dr. K and see if he will get in touch with them. There has to be something we can do. I don't have much money but if we all donate even a few dollars maybe someone could get down there and help her! Jesus I am so scared for her and she has been through so much!! You know they are not giving her the vitamins and protein that are needed which will only make things so much more worse.
Barb,
I know how to find her...but we have no "standing," as they say in legal situations. No matter how well-meaning, we are just a bunch of strangers and, because of HIPAA, they cannot even acknowledge that she is a patient or what doctor is hers. We are the cyber equivalent of nosey neighbors. And to make it worse, we are nosey neighbors who think we know more than the medical professionals on the scene.
I am frustrated, too. I texted her this evening...no response so far. (And her voice mail mailbox is full. So you have to get lucky and call when she can answer the phone.) I guess I/we COULD send something addressed "to the doctor of ," but my personal experience with family members' SNF doctors has not caused me to believe that they would take the time to read it.
It is tempting--to me, too--to offer to pay for airfare and such for one of our experts, but I'm pretty sure that anyone clever enough and confident enough to handle the task would know that, lacking standing, they might not be well received, by staff or family or the patient herself, given that she is dependent on those people on a day-to-day basis.
I'll call her again in the morning.
It seems that they at least should be made aware that she won't absorb certain forms of medications...
