2023 has sucked!

[JackieOnLine]

I also got a new diagnosis, Mast Cell Disorder. I also have idiopathic anaphylaxis. I have two other rare orphan diseases so I have a grand total of four rare orphan diseases!

I'm so sorry, nobody should have all that to deal with all that.

 

[Webmommy]

This sounds terrifying and miserable. Is there any chance you can stay somewhere else while the work is being done? Cat allergens are unique, and stick in an environment like nothing else. Houses that haven't have a cat in them fire 20 years can still have cat allergens sticking to walls. I'd also wash, and repaint everything. I hope you get some relief

My allergy pa said it takes three years of vacuuming weekly to remove all the dander. But the contractors told me when they ripped up the carpet they could really smell that cat. They vacuumed the floor, used biohazard cleaner to clean cat dander and some kind of stuff to kill the black mold. Then they kilz the whole floor.

My cousin does this kind of work and told me what I needed to do. Or have done because *I* am not doing anything! He also suggested cleaning the walls and it was supposed to be done but I don’t think it was. I still see some of my kids handiwork on the walls!

The contractors said we should paint our walls now but just can’t do that after putting so much into the floor. Although my husband wants to paint a little at a time on his own. We’ll see.

 

[Webmommy]

Hoping you can get to the root cause of this all and get relief. Are you potentially allergic to a preservative in the vitamins?

The root cause is my immune system perceiving everything is a threat and over reacts. So the medications to turn down my immune system are what we have been trying but from the least risky to the most risky.

I don’t know what it is that I am reacting too. I am reacting to the iron now too. The DHC iron and Ferrous fumerate are problems. And the multivitamin has iron in and ascorbic acid. Ascorbic acid is a common trigger for those with mast cell disorders. It could be the fillers but who knows. I might have to get vitamin C from a natural source rather than a lab created vitamin c. I ordered a new iron and so far so good. I do know that pretty much citric acid is a not an option. I can only eat so much before it’s a problem citrus is fine. But fruit snacks, certain sour candies and citric acid is a common preservative in food yet I can eat citrus!

I’m pretty sick of this body!

 

[JackieOnLine]

I don’t know what it is that I am reacting too. I am reacting to the iron now too.

I hope you can get this figured out - so complicated.

 

[hilary1617]

Hope your mast cell specialists can help you figure out a way to stop the reaction. That's really tough!