Possible SIBO and peristalsis issues

[Spiky Bugger]

Oh, yes!

When we moved to the Las Vegas area, I needed to find a gastroenterologist, “just in case.” I found a really cute, young, Italian Import GI guy and was thrilled. Until I learned that he belonged to the “anything over three bowel movements per day = diarrhea and required treatment if that continued more than a few days; and urgency, consistency, etc were not really important considerations.”

So I ended up with the grumpy old guy at a place farther from home.

And another symptom I have…I generally don’t hear others complain of it…is a relentless craving for sugar, which makes sense as that is a “major food group“ for yeast, right? If my arms and torso start itching and I’m foraging through the kitchen in search of anything that lists sugar as the main ingredient...that’s when I suddenly think, “Oh, no. Here we go again.”

 

[RainCity]

I’ve been having a number of GI issues for the last year (e.g. bloating, oily/smelly stools, abdominal pain, low BMI, heartburn...). My recent EGD+Bravo and colonoscopy showed nothing (i.e. no Crohn’s, polyps, ulcers, gastritis or esophagitis), just acid reflux, which I’ve struggled with for years. I also had some fecal tests and my new gastroenterologist sent me a MyChart note that she thinks I may have Exocrine Pancreatic Insufficiency (EPI). Could you be having chronic or acute pancreatitis?

I also have gallbladder and liver ultrasounds scheduled for next week. Once I have all these tests completed, I’ll meet with Dr K for his assessment. Earlier this year he had recommended I work with a gastroenterologist for colonoscopy & EGD procedures, as he’s only done EGDs on me in the past, plus some abdominal surgeries in 2018.

Good luck!

 

[Mystrys]

I’ve been having a number of GI issues for the last year (e.g. bloating, oily/smelly stools, abdominal pain, low BMI, heartburn...). My recent EGD+Bravo and colonoscopy showed nothing (i.e. no Crohn’s, polyps, ulcers, gastritis or esophagitis), just acid reflux, which I’ve struggled with for years. I also had some fecal tests and my new gastroenterologist sent me a MyChart note that she thinks I may have Exocrine Pancreatic Insufficiency (EPI). Could you be having chronic or acute pancreatitis?

I also have gallbladder and liver ultrasounds scheduled for next week. Once I have all these tests completed, I’ll meet with Dr K for his assessment. Earlier this year he had recommended I work with a gastroenterologist for colonoscopy & EGD procedures, as he’s only done EGDs on me in the past, plus some abdominal surgeries in 2018.

Good luck!

Thank you for the input!! I have actually considered this but I don’t seem to have the symptoms. I plan to ask my current Gastro for a follow up since the Rifaximin hasn’t seemed to fix this. I will ask him then. I had asked him initially if he thought I needed to add digestive enzymes and he said no and to make sure not to take ANY probiotics either. So.... yea.... I’m at a loss. My bathroom issues run more to chronic constipation and I have actually been hospitalized for pancreatitis in the past. It was a result of an ERCP procedure and was one of the MOST EXCRUCIATING things I’ve ever experienced. This isn’t the same in any way, but I also realize it probably won’t be.

I’m really trying to stay in my lane. It’s so challenging being stuck in this weird in-between. I have educated myself but I’m certainly not an expert YET I still need a reliable doctor/specialist to help guide me. Self advocacy is one thing, but I’m getting lost in all the research that I’m just honestly....not qualified for!!! I feel like this is all Waaaaaay above my head but I keep digging, keep reading, studying and trying. I CANT LIVE LIKE THIS. I’m miserable with every bite of food I take.

 

[hilary1617]

Mystrys, I'm sorry you are still suffering. I hope you find the cause and it gets better soon.

 

[Webmommy]

Thank you for the input!! I have actually considered this but I don’t seem to have the symptoms. I plan to ask my current Gastro for a follow up since the Rifaximin hasn’t seemed to fix this. I will ask him then. I had asked him initially if he thought I needed to add digestive enzymes and he said no and to make sure not to take ANY probiotics either. So.... yea.... I’m at a loss. My bathroom issues run more to chronic constipation and I have actually been hospitalized for pancreatitis in the past. It was a result of an ERCP procedure and was one of the MOST EXCRUCIATING things I’ve ever experienced. This isn’t the same in any way, but I also realize it probably won’t be.

I’m really trying to stay in my lane. It’s so challenging being stuck in this weird in-between. I have educated myself but I’m certainly not an expert YET I still need a reliable doctor/specialist to help guide me. Self advocacy is one thing, but I’m getting lost in all the research that I’m just honestly....not qualified for!!! I feel like this is all Waaaaaay above my head but I keep digging, keep reading, studying and trying. I CANT LIVE LIKE THIS. I’m miserable with every bite of food I take.

What’s the rationale for NO probiotics or digestive enzymes? I have terrible constipation and I am trying to figure out which things to use without becoming dependent. The NP at the Bariatric surgeon’s office was freaked when I said I took 6 senna and 6 bisacodyl a day. Sometimes a cap or Miralax regularly throughout the week. She suggested super digestive enzymes along with probiotics. I already take probiotics twice a day.

I research a lot but it’s so I know what questions to ask and be proactive in my health. But when I feel like I am in over my head which has happened when it came to my back, I kept following up with my primary care doctor and asking is this right, does this seem reasonable, should I see someone else? I didn’t feel like I could trust the surgeon but I could trust my primary care physician. That way I don’t feel on my own so much. Do you have a doctor like that?

I have an acquaintance who has an autistic child who is regularly full of poop and miserable no matter what and my son(who’s also autistic) has had mega colon. When he was four we did two bottles of magnesium citrate for his colonoscopy and he was still full of poop. Her daughter swallowed this capsule that has a camera in it or something to see the peristalsis in motion and how slow or fast it is. It was a few years of testing to finally find out that she had Hirschsprung’s disease. When your child is autistic they like to blame it on that just like they like to blame whatever is wrong with us on being fat or now the DS. It causes a little delay but don’t give up.