hilary1617
First time at the rodeo.
- Joined
- Jan 6, 2014
- Messages
- 3,870
So, there's something going on for which a scan would probably be helpful, but I am trying to avoid, so I haven't told my doctors:
(1) For past two nights and all day yesterday I had a fever of 102-103ish, with chills and sweats.
(2) My left upper quadrant right by the ribs feels like I stubbed it - for lack of a better description - just like a stubbed toe only in my abdomen. Constant, pretty intense pain that is tender to touch and hurts more when I move.
(3) I've been eating and drinking - has no impact on the pain and everything is coming out as usual waste-wise.
(4) Both types of waste are moving though the system as usual, though volume of urine output is super high. All of my lipo-lymphedema and the swelling normally present in my abdomen is gone. Hooray!
(5) No blood or tarry stuff in stool. Just usual DS poop at usually frequency and consistency.
I was going to "go in" if my fever got to 104, but it maxed out at 103.2. I was also going to go in if my pain got unbearable, but it has remained constant at 6-7, which I can manage.
- As of mid morning today, the fever is gone, yet the pain persists unchanged.
- Does anyone have any clue what this could be? I'm thinking diverticulitis or some kind of viral infection?
- Am I being a fool not to go in, or am I probably ok now that fever has passed?
I have a history of distal pancreatectomy and liver resection (grew back) from 2013 that has led to persistent hepatosplenomegaly. No heart problems and I feel great, better than usual probably because I am actually rested, having spent yesterday in bed, and all the swelling I normally have has abated.
The long and short of avoiding scans it is that due to history of Pancreatic Neuroendcrine Tumor I travel to experts in NOLA to get CT and MRI twice a year. I get an octreoscan on one of those visits as well. I am working hard to fight with insurance to get Gallium 68 Netspot instead of octreoscan as it is much better at imaging NETS and recently was FDA approved. I am scheduled in January 2018 for this. If I get another scan now, my insurance may disallow the Jan scans on that basis. Plus, I generally have enough exposure to radiation, heavy metals, nuclear meds etc. that I don't want any scans that aren't absolutely necessary.
(1) For past two nights and all day yesterday I had a fever of 102-103ish, with chills and sweats.
(2) My left upper quadrant right by the ribs feels like I stubbed it - for lack of a better description - just like a stubbed toe only in my abdomen. Constant, pretty intense pain that is tender to touch and hurts more when I move.
(3) I've been eating and drinking - has no impact on the pain and everything is coming out as usual waste-wise.
(4) Both types of waste are moving though the system as usual, though volume of urine output is super high. All of my lipo-lymphedema and the swelling normally present in my abdomen is gone. Hooray!
(5) No blood or tarry stuff in stool. Just usual DS poop at usually frequency and consistency.
I was going to "go in" if my fever got to 104, but it maxed out at 103.2. I was also going to go in if my pain got unbearable, but it has remained constant at 6-7, which I can manage.
- As of mid morning today, the fever is gone, yet the pain persists unchanged.
- Does anyone have any clue what this could be? I'm thinking diverticulitis or some kind of viral infection?
- Am I being a fool not to go in, or am I probably ok now that fever has passed?
I have a history of distal pancreatectomy and liver resection (grew back) from 2013 that has led to persistent hepatosplenomegaly. No heart problems and I feel great, better than usual probably because I am actually rested, having spent yesterday in bed, and all the swelling I normally have has abated.
The long and short of avoiding scans it is that due to history of Pancreatic Neuroendcrine Tumor I travel to experts in NOLA to get CT and MRI twice a year. I get an octreoscan on one of those visits as well. I am working hard to fight with insurance to get Gallium 68 Netspot instead of octreoscan as it is much better at imaging NETS and recently was FDA approved. I am scheduled in January 2018 for this. If I get another scan now, my insurance may disallow the Jan scans on that basis. Plus, I generally have enough exposure to radiation, heavy metals, nuclear meds etc. that I don't want any scans that aren't absolutely necessary.
