New urologist. Ugh.

[bearmom]

I've waited a long time and jumped though so many hoops to see this urologist, so it was doubly disappointing for her to give me so much information that has mostly been overruled in the last 15 years or so.

I will spare you going into all the history, but there is some hereditary thing, and of course the fat malabsorbtion with the DS makes a difference for us stone formers, but she doesn't have time to hear any of it, didn't bother to read ANY of the 30 pages of **** they have me fill out detailing all of it. She then proceeded to reverse the only bits of useful advice I've gotten over the last decade and a half.

When it was apparent I was having trouble with most of her advice, she needed to tell me how she is more successful at recuding kidney stones that ANY OTHER UROLOGIST in the area.
It's not that I expect anyone here to fix this for me, I just needed to bitch where someone would understand. There are too many heavy things on my plate lately, and I really hoped to not have one more thing that was more of a battle than a help.

Screw this neurologist.

 

[Larra]

I'm so sorry you went through this, and hope you will find a more humble and up to date urologist.

 

[LizJ]

Ack! Finding good medical help is hard!

 

[Spiky Bugger]

Yup.

It’s tough.

My uro and I have decided that:
•I will continue to form calcium oxalate stones and cannot adhere to a low oxalate diet.
•I will take Urocit K, morning and evening.
•I will get an ultrasound maybe every six months, so we can watch the stones grow.
•We will proceed with stone lasering(/removal as needed.
•Stones are a pain, but a trade off for a BMI of 53 and being dead a while back.

 

[Spiky Bugger]

Bearmom, can you elaborate on the restrictions DS puts on avoiding kidney stones?

I'm new to all this

G

While she’s out looking for a new urologist...this is re MY stone situation:

Oxalates are found in many, many fruits and veggies. Humans don’t need them. In a fully functioning body, the oxalates we consume combine with the calcium we consume and are eliminated in feces. In a body that doesn’t absorb calcium very well, or at all...depending on your configuration...the oxalates proceed to your kidney and, since our bodies don’t need them there either, they hang out waiting for SOME calcium...find it...and create calcium oxalate stones.

We can take calcium every time we eat an oxalate-containing food...overdose unlikely if the cause is that we don’t absorb it In tne first place. There are lots of other suggestions all over the interwebz.

 

[JackieOnLine]

It's not that I expect anyone here to fix this for me, I just needed to bitch where someone would understand. There are too many heavy things on my plate lately, and I really hoped to not have one more thing that was more of a battle than a help.

I'm so glad this has happened and that other things are hard for you, too. so maybe it's selfish but I'm glad to see you posting here again.

I hope you come back!

meanwhile, this IS an excellent place to rant.