So now it’s over 3-1/2 years after my initial diagnosis of stage F2 fibrosis, stage S1 steatosis. I talked the liver specialist out of doing a biopsy at that time because my liver numbers were getting better.
My most recent numbers:
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So a couple of months ago, I saw an advertisement on Facebook for clinical trials for NAFLD, so I signed up for an evaluation. While I was interested in my own situation, I figured there might be something for Charles and his cirrhosis (which is currently very stable, but it is still cirrhosis, and he takes a lot of medicines to keep it that way).
So I had my appointment yesterday. They did another FibroScan. And this time my numbers were stage F0 fibrosis, stage S1 steatosis. So I don’t seem to have NASH anymore, just a slightly fatty liver. He said to lose about 12 lbs and even that should go away.
I feel a bit odd about this. I figured I was supposed to be trying to keep it from getting worse, not thinking it could get better. I’m good with that, just surprised.
Sadly, there was nothing for Charles. Even though he’s gotten better too - two years ago, he was getting ascites drained off his abdomen every 5-7 weeks; he hasn’t been drained in a year now. But the cost is having to take powerful diuretics and Xifaxan (an antibiotic that somehow prevents hepatic encephalopathy caused by ammonia in the blood), which really mess with his guts, and have him going to the bathroom multiple times during the night. But his liver numbers are perplexingly good too, so don’t mess with success.
