I'm having trouble sleeping so I'm pretty tired. My feeding tube was leaking yesterday so after being home for 2 days I had to go back to er. At least they didn't keep me they just lowered my feeding rate. So although I'm hooked to feed machine all day I'm only getting 30 ml an hour of hydration.How are you doing today, Dawn?
The nightmares are the worst I am still terrified I'm not going to make it thru this.