I know of one other (on FB) who has this issue. She had a shunt to help hers.
Among Cameron's other issues he had neurological issues (autonomic dysfunction) and made 5 trips to Mayo in Rochester. He had a spinal tap and they found a couple of things. Oligoclonal banding in his CSF and Serum (marker found in many MS patients and other auto immune disease..nothing has come of it so far) and on the test his CSF pressure was high. They Neurologist at Mayo didn't think anything of the high CSF so they didn't do anything about it. I do know that for a year after chemo Cameron was dizzy 24/7 and nothing helped (tried numerous meds and they exacerbated the problem). They did find that he tested positive for a p/q type calcium channel antibody which is found in patients with a syndrome called LEMS. Thankfully he never developed the symptoms (a very majority of people who have this develop lung cancer and don't make it) and two years later the antibody was somehow gone. Crazy and I don't if the pressure could have been causing his dizzy/lighthead but maybe it was.
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