Anybody here speak fluent Doctor?

Spiky Bugger

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Again, long background…I (we) go to a large Ortho group. Started with the KHD (Knee/Hip Dude). In HS, he carpooled with a guy I dated, so we kinda connected. (When the mutual friend hit town, KHD even took us to lunch at his country club.)

A few years ago, when spine damage became evident, I was sent to one spine guy, but he wanted surgery and I didn’t.

Then recently, it was the ASD (Arm Shoulder Dude) who gave me the steroid injection and gave me an arm I could use! Injection IS wearing off, but it has been a huge improvement!

On to the SD (Spine Dude) because my calves and feet are in BAD shape. After about an hour or so of sitting in one position and driving, my feet could no longer feel the gas or brake pedals. SD says the way to go is another steroid injection, later on, in the spine. Here comes the problem…

SD says that I can only receive three, maybe four, steroid injections in a year and the shoulder jab that ASD gave me has already used one of those and I’d have to choose.

Didn’t sound right. I went to online sources…Mayo, Cleveland, PubMed…and asked I my Physical Therapist.

The medical sources ALL said that the limit was “three per year PER AREA,” and there should be at least 12 weeks between jabs.

My Physical Therapist wrote, “I’m not sure on the cortisone rule, but I would be careful about how many. At this point it’s more risk vs benefit. If you were like super active or wanting to get back to pickle ball or something I’d say chill on the injections because they decrease tendon integrity and can contribute to tears or injury. I don’t think I’ll see you on the court so I think if one of the MDs says yeah sure it’ll be ok, and they help your quality of life, then there’s the answer.”

I don’t play pickle ball. And it IS a quality of life issue for me and my ADLs:

•If I treat ONLY my spine, I will be unable to bathe, dress, or feed myself w/out assistance. Transferring will be dangerous, grooming a joke and post-toileting cleaning-up a nightmare!

•If I treat ONLY my shoulder, I will be always attached to my rollator (walker); I will be a real fall risk at all times, especially night time potty runs; I will be unable to drive, and if my hero loses HIS license, we will both be housebound or relegated to those senior transport services…and they don’t CARE about my bathroom issues.

I see the ASD Thursday. It has been ten weeks since the first jab and I can wait a bit longer for a second one there. It is “tender,” but no horrid pain like before.

BUT…WHERE DO I START IN ORDER TO GET WHAT I WANT?

1-Tell the nice lady who works with KND and SD that unless there is real concurrence in Medicine World that three shots total per year is the limit, I will be getting three in both areas…and while I want to do it there, my ability to function is my primary concern…and ask HER where to start.

2-Wait and see ASD, tell him what SD said, and put HIM in the position of confronting someone.

I’m old. Too old to give a rat’s ass about pickle ball. And I can handle SOME pain, as long as I can function.

Any ideas?
 
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That looks promising! I don’t have spine pain. But that’s where the problem starts. I will ask!

🙏🏼
 
BTW, they are right about steroid injections. You have to wait a minimum of 3 months between, and getting too many is bad. My orthopedic doctor was actually glad to see my knees had graduated to bone on bone so I could graduate to the orthopedic surgeon. The surgeon called me a tweener. Unless the MRI of my knees indicate otherwise, I’m not quite ready for a full blown knee replacement but maybe a clean out. He’d like to hold off on the full blown replacement. I’m okay with that. He also mentioned a different, stronger steroid he could use. And my husband is getting a different type injection that is three weekly in a row. It helps some people, not everyone. Didn’t help me. But it seems to be helping him. The injection is called Euflexxa.

As far as the SCS, I discovered during my trial, that it helped the numbness in my feet that is caused by my spine.
 
BTW, they are right about steroid injections. You have to wait a minimum of 3 months between, and getting too many is bad. My orthopedic doctor was actually glad to see my knees had graduated to bone on bone so I could graduate to the orthopedic surgeon. The surgeon called me a tweener. Unless the MRI of my knees indicate otherwise, I’m not quite ready for a full blown knee replacement but maybe a clean out. He’d like to hold off on the full blown replacement. I’m okay with that. He also mentioned a different, stronger steroid he could use. And my husband is getting a different type injection that is three weekly in a row. It helps some people, not everyone. Didn’t help me. But it seems to be helping him. The injection is called Euflexxa.

As far as the SCS, I discovered during my trial, that it helped the numbness in my feet that is caused by my spine.
Great info! Thanks!
 
Thanks, but my spine is not causing me pain right now. Just hot or cold or tingly or numb feet. It’s just SO frustrating, in that it sounds like I get to choose WHY I’m a disabled, housebound old cripple. Meanwhile, my hip/knee ortho surgeon is a year older than I and for THEIR 50th anniversary last September, he and his bride were going to go to Yellowstone because that’s where they spent their honeymoon. HOWEVER, they decided to join friends bicycling around France instead.

We had dinner at a local, rustic-themed, steak (likely only choice cuts) house chain restaurant, with MiniSue, MrMiniSue, and MrMiniSue’s Minion. Not as fun!
 
I’m now scheduled for an epidural (steroid, I think) injection on 5/16.

I really like Shoulder Dude. I told him what Spine Dude told us. And that I checked Mayo, Cleveland, PubMed, etc and found only the “three per site” info. Shoulder guy said, “And that’s the information I have and believe. So let him do the spine and we will wait and work with your shoulder.”
 
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Following @southernlady post:

I had a temporary neurostimulator (which I think is similar) placed on my lower back for a week in June of 2022. Its purpose was to interrupt and reduce the pain signals to the torn, buried and damaged nerves in my ankle. The goal was a 50% reduction in pain. (If it had worked, I would have gone with the permanent one.) Unfortunately, it didn’t come close. I’m now with a peripheral nerve surgeon. Even after my next peripheral nerve surgery, I might need a neurostimulator implanted in my leg if the surgery doesn’t provide enough relief. The peripheral nerve surgeon would do that, too.

However, I can definitely recommend looking into it as it might help you. It works well for many. I used a pain specialist for it. I know neurologists do it as well.

The neurostimlator makes it difficult to have MRIs. Just a heads up in case the spinal one is similar in that.
 
That’s great. Are you looking at a permanent one?
Yes, surgical date is June 11th. Mine is the Abbott version. https://www.neuromodulation.abbott/...eurostimulation-treats/eterna-scs-system.html
Rechargeable and able to handle MRI’s. Charles is looking forward to plugging me in monthly, lol.

And usually they put the battery in the butt cheek, but my doctor is actually gonna put it just above my hip under my rib cage where I have a bit more “fat”, since my butt has none.
 
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