Reading some strange things.

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feeder

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Jan 8, 2014
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It's a pattern when I am down for the count I am reading more on the wls boards. Is it just me or are we seeing more DS revisions for malnutrition taken place sooner and with surgeons who clearly do not have the skills? Some of this scares the **** out me. Battling my DS for six years and knowing that I have other health issues are a factor for me not jumping on the DS revision band wagon. I have Full hemo labs and Endo labs every 3 months. If I go into PCM I know it right away not by labs alone, but because I am aware something is going on outside of my body or in my body. Could be stress, overgrowth, bad teeth healing, doesn't matter I have no choice but to get on those protein shakes 5 to 6 times a day. That means you nurse it all day every day, day after day, after day. Nasty ass things, just love them to death. My protein levels stay around 6.7 but do dip to 6 or 5.9. Never lower. My issues are blood related. And it has taken my quality of life but we adjust. There is creon and TPN, I just don't understand how it gets to the point of death.

I am blessed not to have mental health issues, does run in my family, dodged that bullet. What do you guys think could happen to a person who is bipolar, depressed, eating disorder, ect. who has lost too much weight from a DS and continues this pattern of PCM. Reading through some of the post makes me wonder if there is some underlining factor in some of these cases. It really makes a person who is thinking about lengthening cc wonder what other factors could be playing a part.
 
It would be hard to pinpoint because there would be so many varying factors. Some people's bodies just do not seem to adjust well to the new arrangement. Maybe a pre-existing malabsorption issue that is magnified by the DS? Others seem to have problems with compliance. Some just don't have the knowledge to manage the DS. Someone just recently posted on FB about donating blood. Seems there are those were never cautioned against doing so by their surgeons.
 
Ok, I have 2 questions...
What is PCM? (Google is telling me about audio frequencies, and that's clearly not what you're referring to)
And what about donating blood? I'm wondering if all the nutrients and micronutrients that we try so hard to put into our bodies get taken out when donating? I'm one of those that was never warned against it
 
When I had surgery, it was commonly recommended that we do not donate blood. Our surgery seems to make it more difficult to absorb iron, so to lose so much blood via donation can cause some to have real problems in recovering back to normal levels. I am sure there are some who can do so, but it is risky.
 
Never heard about the no donating blood thing but, it makes sense to me - hold on to all your iron.

I have only read about one person who was considering a revision from the DS due to mal-nutrition. I have read more about doctors being accused of being too conservative and not giving a very powerful DS.
 
People who do not have wls and dip into PCM for many a reason have to follow a tight regime what ever that may be to bring you out of it. To read things on the boards like giving blood, keep trying to work out, keep pushing one's self past the point of good just makes no sense. Until this after care with all wls gets better we are just seeing so much that doesn't have to be. Now as I lay here I am tired, low hemoglobin, low red cell, low iron, ect. Had my fusion three weeks ago and still not getting any effects. Hanging on till tomorrow with hemo to see the labs and what we can do. Canceled trip to Orlando w/grandkids staying at Magic Kingdom, just can't do it. Made other arrangements to Destin Florida. We have a condo on the ocean. Will be flying with wheel chair in hand. I can walk for small amount of time, but when it gets to the point of having to choose between talking and walking wheel chair becomes my friend. Glad to see it go, but smiles big when she comes back to me when needed.

I often think of my sister who past away a few months ago. She wanted so bad to have a DS. She was a nurse but disability's with mental health issues kept her from working. What I go through to keep my health and appearance up are a full time job. Knowing no way could she do what I do made me sad. But knowing she was suffering was making me sadder. So when the time came and passed it was with a open heat for me that she left this earth. Too much suffering in her life and it was time to go. As strong as I like to believe that I am to watch my sister get a DS and go into depression, manic episodes and not take her vits, and eat right, not drink her fluids because she is just so tired was something I knew would happen. She has a pattern of this with her psy. meds. Diane if your tired and can't eat or drink or take your meds, let's get you into the hospital. Nope. So we wait until she becomes suicidal and then we go.

My mother wanted a beauty queen, Oldest sister became that. Wanted a athlete youngest son became that. Us middle one's were the luckiest. Diane being the next oldest wanted all the attention her older sister was getting from being a beauty queen. From the time she was 4 she was in the paper, awards, traveling, costume's, Miss Purdue ect. Now Diane was just as pretty as Denise but one beauty queen was all that was needed to fill the void. So I watched my sister try her whole life to measure up to something she was never suppose to be in the first place. She was shy, quite, caring, liked to sew and do art when she was young. Didn't want to date much. Liked staying at home and marching band was her thing. Denise was cut throat, No.1, you know the harshness it takes to be on top of beauty being competitive and stay there. Anyhow what leads me to writing about all this is the hidden desire I seen so real in Diane wanting to be so thin and have all the boys like her. At her age of 55 one would think this would have faded over the years. As soon as she started the process of getting WLS all this unresolved beauty pageant stuff started coming out. How she was going to be so beautiful and all the guys would want her then. Diane was married for 25yrs. to a dead beat who molested her 3 children. She had been divorced for 10 years before she died and never dated in that time period. Diane need I remind you that you and Denise looked exactly alike throughout you childhood and into adulthood. All the guys would come to you and say, Denise? You would tell them no I am Diane and then get mad at Denise. You could never see how beautiful you were because your anger at mom and Denise for not letting you become a beauty queen. Your anger, hurt, self pity made you not pretty as you grew older, not your appearance. Sure Karen you were always fat and a tomb boy, these things you never wanted so you can't possible understand. All these years I reminded my sister I was not thin like you and the others but I was not fat don't recreate history. Today I realized she was incapable of seeing me not fat my whole family need me in that role, filled that void for them. I never bought into it. Diane until the day she died thought being a size 2 at 55 would just be wonderful.

The gift that was given to me by not having to witness my sister go through this is truly a blessing. Having said that, the selfish me longs for our time of intimacy only her and I had. Loving someone with mental illness is a gift unto oneself.
 
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