N00DLE
Active Member
- Joined
- Aug 22, 2020
- Messages
- 38
I thought I would share some of my Osteoporosis journey in hopes that it may help.I am losing bone in my mouth, I have teeth that the roots are now showing, i take Citracal (650 mg) 3 times a day. And calcium carbonate (600mg) per day. I was wondering if something else I’m not taking could cause this. Also been arguing with hematologist about another iron infusion. He says all my blood work is good, Hemoglobin 13.3, hematocrit 40.4, iron 70. When ferritin was taken a year ago it was 62. Any advise or suggestions?
My 1st question is have you had a dexiscan to get a baseline of where your bone density is throughout your body.
Also I highly recommend you see an endoconologist that specializes in bone loss other doctors are not trained to treat appropriately in my opinion.
I had my DS in October of 2012 and 5 months later was diagnosed with acute myloid leukemia so my medical history is a little different.
At 48 my leukimia treatment put me into rapid menopause and I had basically no symptoms other than the finding of severe osteoprosis shortly after.
I discovered I had osteoporosis due to a wrist fracture in a very very minor fall in soft sugar sand in Florida.
I always took a ton of vitamins diligently i
Including 4 times the amount of calcium that you're taking. My calcium and PTH were always in the normal range and yet I still got
severe osteoporosis so a dexi scan is the only
definitive way to determine where you're at.
Once diagnosed I was put on 2 years of
fortero and injectable you take every day.
I had no side effects and had great success my spine went my spine went from a negative 3 dexie to osteophemia and the to osteophenia and I actually gained back the half inch that I lost
due to micro fractures. Fortero This is the only drug that actually grows new bone you can only take new bone you can only take it for 2 years though.
My endocrinologist now wants me to take prolia to solidify the improvements that I gained and have further bone strength and I improvements however I am very concerned I am very concerned about negative side effects that I have read about.
I am in the process of making sure that my calcium is high I calcium is high enough to take prolia because it has to be yeah because it will deplete your calcium numbers.
Interesting enough my endocrinologist prescribed
hydrochlorothiazide 25mg To help with calcium absorption it did an amazing job other amazing job other benefits of this drug which is mainly just a diuretic is just a diuretic is that my blood pressure went down and it also and it also increases the size of the blood vessels in your kidney which allows for kidney stone
s to pass easier if you have this stones to pass easier if you happen to have those.
My plan is to have another dexie scan to see where I'm at and to see where I'm at and meet with my endo
to talk about my talk about my concerns about my concerns about prolia side effects. He is a big proponent of it and has had great success with the drug.
while in l treatment I also had a second wrist fracture wrist fracture my doctor says that my bones are like says that my bones are like paper mache so I must be diligent must be diligent and take care of my phone strength as much as this aint bone strength as much as possible I'm only 56 years old and very active.
That's my experience once I make it determination as to prolia I will post another as to prolia I will post an update thanks for listening hope this was helpful.