It will be 3 years sense I have been to Mayo Clinic. As a lot of you know I am not the kind of person to rush into anything. Been trying to wrap my mind around a revision to lengthen my cc. for the past 2 years. The revision would be done by a very good cutter who does the DS. For many years now I have wrestled with what came first the chicken or the egg? And can we go back in time and be the same way before the revision? I think not, but maybe. After tracking my life and peeling back the onion peels I see several things that if could be controlled I would not have the revision. When I ask the 3 cutter doctors who do the DS if these problems will resolve after the revision they can not say for sure. I am a very high risk as I am full of adhesions, and mesh. Many abdominal surgeries. Been anemic sense I was in my teens and after my 3 child was told not to have anymore. In my early 20's was diagnosed with chronic fatigue and colitis. In my 30's was told I had Fibo. In my 40's told I had sleep disorder called narcolepsey. Never let these things define me or stop me from doing what I was called to do, just needed to do things different and slower.
After my DS the anemia was kicked into high gear. Hemo says any WLS can kick start things that may not rear their ugly heads until years from now. I have been IV dependent right out of the DS gate. Been told by her that if it was just anemia that the iron infusions would fix it. It makes me feel better after each one but never get my red count up out of low or my hbg is low. She tells me I have a blood disorder of unknown sorts and in time it will come to light until then we just manage it.
Chronic low blood sugar. Started after my DS. Water, exercise, heat, stress, and overgrowth all can play a role in this. I have this tested every 2 months and my alc is 3. sometimes its 3.1. Trust me I work on this as it leads to a very bad quality of life.
Overgrowth. I can not say enough about this. In the last 3 years my overgrowth seems to be leading me through some dark days. antibiotics, you bet ya. 500 x 4 a day 7 days a week. 3 weeks out of the month. Trial and error hear. Seems I do not absorb all the antibiotic. Try telling that to a GI who is not going to think out side of the box and even if he understands it is mandated by guide lines from FDA and insurance. The overgrowth keeps my vits. and nuts. from being absorb keeps my tummy feeling full all the time, feeds off the sugar that I do intake in fruit, and leaves my blood sugar low.
My hemo tells me its time to have another bone tap but that she would like to send me back to Mayo for it and have me checked out there. Why I asked? Insurance is stating how many iron infusions one can have in a year and until we can find out what is wrong with you Mayo can over ride this with a treatment plan I can follow here. Why can't you override it, I asked? Wanting me to get testing on other things as well and switched the conversation.
Saw my Pcp who has given me my antibiotics for the last 3 years as directed by Mayo treatment plan. Tells me he does not feel comfortable giving me the antibiotics but will send me to a GI. Seen the GI 3 weeks ago. He puts me on the antibiotics but wants me to go back to Mayo and get a updated treatment plan. Do we see a pattern here?
I know people with Lymme disease who take many antibiotics as it gives them quality of life back and manages symptoms when it flares. Can I get this overgrowth under control with long term antibiotics and will the doctors prescribe them in the dosage I need throughout my life?
Will I be able to reley on infusions every 2 months for life? Will a revision fix this not knowing if it is DS related in the first place.
Will my low blood sugar be under control with a revision or is this something else also?
Off to Mayo I go. Seeking answers. Any thoughts here. People who have had cc lengthen can you give me some insight.
After my DS the anemia was kicked into high gear. Hemo says any WLS can kick start things that may not rear their ugly heads until years from now. I have been IV dependent right out of the DS gate. Been told by her that if it was just anemia that the iron infusions would fix it. It makes me feel better after each one but never get my red count up out of low or my hbg is low. She tells me I have a blood disorder of unknown sorts and in time it will come to light until then we just manage it.
Chronic low blood sugar. Started after my DS. Water, exercise, heat, stress, and overgrowth all can play a role in this. I have this tested every 2 months and my alc is 3. sometimes its 3.1. Trust me I work on this as it leads to a very bad quality of life.
Overgrowth. I can not say enough about this. In the last 3 years my overgrowth seems to be leading me through some dark days. antibiotics, you bet ya. 500 x 4 a day 7 days a week. 3 weeks out of the month. Trial and error hear. Seems I do not absorb all the antibiotic. Try telling that to a GI who is not going to think out side of the box and even if he understands it is mandated by guide lines from FDA and insurance. The overgrowth keeps my vits. and nuts. from being absorb keeps my tummy feeling full all the time, feeds off the sugar that I do intake in fruit, and leaves my blood sugar low.
My hemo tells me its time to have another bone tap but that she would like to send me back to Mayo for it and have me checked out there. Why I asked? Insurance is stating how many iron infusions one can have in a year and until we can find out what is wrong with you Mayo can over ride this with a treatment plan I can follow here. Why can't you override it, I asked? Wanting me to get testing on other things as well and switched the conversation.
Saw my Pcp who has given me my antibiotics for the last 3 years as directed by Mayo treatment plan. Tells me he does not feel comfortable giving me the antibiotics but will send me to a GI. Seen the GI 3 weeks ago. He puts me on the antibiotics but wants me to go back to Mayo and get a updated treatment plan. Do we see a pattern here?
I know people with Lymme disease who take many antibiotics as it gives them quality of life back and manages symptoms when it flares. Can I get this overgrowth under control with long term antibiotics and will the doctors prescribe them in the dosage I need throughout my life?
Will I be able to reley on infusions every 2 months for life? Will a revision fix this not knowing if it is DS related in the first place.
Will my low blood sugar be under control with a revision or is this something else also?
Off to Mayo I go. Seeking answers. Any thoughts here. People who have had cc lengthen can you give me some insight.