cheryl baker
Active Member
- Joined
- Jul 5, 2014
- Messages
- 40
ok well I just had my 1 yr post ds labs done and I am having a melt down right now. My PCP whom I have NEVER talked to except during my physicals called me personally twice this week.. telling me 1) I might need surgery on my parathyroid and than 2) I need infusions cause my osteopenia has turned into osteoporosis.. Not to mention that she and my surgeon both say for the most part the rest of my labs are ok I have been harrassed by another group that I am not worth helping (even though I have done as they said) because I am questioning their all mightness.. Now I understand that vets have a lot of experience and are very helpfull but that should not mean you cannot ask questions.
SOOOO here I am freaking out and they kick me out of the group.. thanks for the help jerks.... So I am here hopeing to find some kinder gentler people to help me
Here is where I am..
pth is currently 108 last reading was 18 and the reading before that was 89
pcp says I need to go to an endo and may need my parathyroids operated on. I have read on the internet and it seems that many times wls patients are operated on unnessarily. I have an appt with the endo first appt isnt for 1.5 months but on waiting list.
surgeon says I need a bone density (which I had already done but nothing was said from him after learning the results).
since my reading was high and than went to normal and back to high does that effect what one would think the problem is. I realllly do not want to have surgery if not necessary but I also realize this is stealing my bones..
my calcium is 8.6 prevous it was 9 and priot to that 8.8 so this time it is actually out of normal range but although the previous 2 readings were in range they were at the low end..
My vit D was the really only good thing it was 64 which is pretty much in the middle.. previous readings were 59 and before that 28.9. So it has continuously going up. other group says I need to increase my D but I really do not think so. it is going up just fine with what am I taking. surgeon and pcp say no need to increase.. But it bothers me that the other group is adament it needs more.. I do not see it..
My Hemocrit and hemoglobin both have been continuing downward the whole time. hemocrit going from 39.5 to 38.4 now down to out of range at 34.1 hemoglobin started at 13.4 to 12.6 and now at the bottom of the range at 11.7
my white blood count started out out of range at 3.5 went into range at 7.9 and now back out of range at 3.3
my red blood count started in range at 4.43 dropped to 4.37 and now finally out of range at 3.68
none of this seems to be following any kinda of logical pattern that I can see from what I knew about these tests..
than there is my iron and ferritin..
my iron is in range at 80 but the other people insist I need iron infusions immediatly. previous reading was done at 65 but I started out at 80. Dunno why it dropped last time but I would say 80 is a realistc number for me and is within range ...
I suspect the problem comes in with my ferritin.. My first reading 6 months ago was 41 within range albeit low.. but in 6 months it dropped to 24.. since low range is 11 it is still within range.. BUT if it drops drastically again it would certainly put me in danger of being out of range.
than my A which started out at 27 went up to 40 when I started taking 2 pills a day and than dropped down this last time to 17 after dropping back down to 1 pill cause my surgeos office was freaking out over such a high dose of vit A.. Even though even with 2 a day it didnt even come close to the high range....
I am taking vitamins for all these things..
iron 65 elemntal
calcium 630mg
A 25,000
D 50,000
currently my plan is to increase A and D to 2 tablets continue taking my iron as listed and double up on my calcium.. going to have to take a different calcium cause I cannot handle more of those horse pills. I have an appt with both the hematologist and the endocronologist. But I want to be well educated on all this stuff before I go.
If you have any experience with these please write back to me.. and if you dont I sure could use some encouragment cause I am reallly stressing out about this having mini panic attacks which is not helping
also anyone familiar with proferrin forte?? I was told to switch from vitron c to it but vitron c is 65 elemental iron and proferrin forte is only 12.. that make no sense... why would a perscription pill be weaker than an OTC..
thanks
SOOOO here I am freaking out and they kick me out of the group.. thanks for the help jerks.... So I am here hopeing to find some kinder gentler people to help me
Here is where I am..
pth is currently 108 last reading was 18 and the reading before that was 89
pcp says I need to go to an endo and may need my parathyroids operated on. I have read on the internet and it seems that many times wls patients are operated on unnessarily. I have an appt with the endo first appt isnt for 1.5 months but on waiting list.
surgeon says I need a bone density (which I had already done but nothing was said from him after learning the results).
since my reading was high and than went to normal and back to high does that effect what one would think the problem is. I realllly do not want to have surgery if not necessary but I also realize this is stealing my bones..
my calcium is 8.6 prevous it was 9 and priot to that 8.8 so this time it is actually out of normal range but although the previous 2 readings were in range they were at the low end..
My vit D was the really only good thing it was 64 which is pretty much in the middle.. previous readings were 59 and before that 28.9. So it has continuously going up. other group says I need to increase my D but I really do not think so. it is going up just fine with what am I taking. surgeon and pcp say no need to increase.. But it bothers me that the other group is adament it needs more.. I do not see it..
My Hemocrit and hemoglobin both have been continuing downward the whole time. hemocrit going from 39.5 to 38.4 now down to out of range at 34.1 hemoglobin started at 13.4 to 12.6 and now at the bottom of the range at 11.7
my white blood count started out out of range at 3.5 went into range at 7.9 and now back out of range at 3.3
my red blood count started in range at 4.43 dropped to 4.37 and now finally out of range at 3.68
none of this seems to be following any kinda of logical pattern that I can see from what I knew about these tests..
than there is my iron and ferritin..
my iron is in range at 80 but the other people insist I need iron infusions immediatly. previous reading was done at 65 but I started out at 80. Dunno why it dropped last time but I would say 80 is a realistc number for me and is within range ...
I suspect the problem comes in with my ferritin.. My first reading 6 months ago was 41 within range albeit low.. but in 6 months it dropped to 24.. since low range is 11 it is still within range.. BUT if it drops drastically again it would certainly put me in danger of being out of range.
than my A which started out at 27 went up to 40 when I started taking 2 pills a day and than dropped down this last time to 17 after dropping back down to 1 pill cause my surgeos office was freaking out over such a high dose of vit A.. Even though even with 2 a day it didnt even come close to the high range....
I am taking vitamins for all these things..
iron 65 elemntal
calcium 630mg
A 25,000
D 50,000
currently my plan is to increase A and D to 2 tablets continue taking my iron as listed and double up on my calcium.. going to have to take a different calcium cause I cannot handle more of those horse pills. I have an appt with both the hematologist and the endocronologist. But I want to be well educated on all this stuff before I go.
If you have any experience with these please write back to me.. and if you dont I sure could use some encouragment cause I am reallly stressing out about this having mini panic attacks which is not helping
also anyone familiar with proferrin forte?? I was told to switch from vitron c to it but vitron c is 65 elemental iron and proferrin forte is only 12.. that make no sense... why would a perscription pill be weaker than an OTC..
thanks