Heading into 3rd Surgery on 2/1/21

Georgepds

Well-Known Member
You're lucky. Lyrica was one of the drugs I tried. Sadly, it didn't help.
Sorry it does not work for you

For me it's weird. Absent the drug, the pain and annoyance keeps increasing.

I pop a pill... and it's there for a bit.. but latter in the evening I notice I'm no longer annoyed or in pain.
 
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Georgepds

Well-Known Member
When Lyrica came out, I was on gabapentine, my neurologist said the
mechanism was similar so switching wouldn’t help. But then we got me off gabapentine anyway. By then the other meds he had me on worked. By the time I had the DS and came off all the pain meds, I realized I no longer needed them.
I'm glad for your luck

I came off a slew of meds for diabetes,high BP, and what have you... even ditched the cpap... but no luck with the pain med. Apparently the damage is cumulative, an, at least for me, irreversible. Well, not quite so bad, at least I stopped progression. For some it is a real trial.

Would that I had the DS a decade earlier

Ah well, Fortune smiles on us all in her own way
 

southernlady

Administrator
Staff member
southernlady I forgot to ask, did you ever have an EMG test? That’s how they discovered the 2 types of neuropathy.
I’ve had so many I’ve forgotten to count. I was in a study in Columbia, MO. I think I had one a month for 18 months. I told my current neurologist that I don’t need another one, I know I have damage to lots of small fiber nerves in my wrists, my ulnar nerves my legs/feet/etc. She’s okay with not testing.
 
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aaa

Well-Known Member
I’ve had so many I’ve forgotten to count. I was in a study in Columbia, MO. I think I had one a month for 18 months. I told my current neurologist that I don’t need another one, I know I have damage to lots of small fiber nerves in my wrists, my ulnar nerves my legs/feet/etc. She’s okay with not testing.
Unfortunately, there’s no way I could ever forget it. It was one of the worst things I’ve ever had. It actually traumatized me for a couple of weeks. I don’t know how you had one so often. You are some kind of woman.
 
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