Have you had a similar situation?

Wendi Mullen

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Joined
Feb 11, 2017
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11
Well, hello everyone! I need some assistance. Please be forewarned, this will be a rather long post so, if you don't want to read too much, I won't be offended....feel free to stop reading!!

I had DS surgery in 2013 and until the end of 2015, enjoyed a wonderful outcome of weight loss (down to 155 lbs) and pretty much, eating as I pleased and staying at the same weight, within 5 lbs. I decided to have the plastic surgery for the removal of excess skin from my arms as well as a breast lift and augmentation (but with my own tissue, not implants, a story for another time!) in January last year. A couple of days before my scheduled surgery, I was having some issues with something I had not experienced since DS...constipation. I didn't think much of it. Just rolled with it. The night before surgery, I started with horrible stomach pains, continued constipation and cold sweats. Because I didn't want to lose my surgery deposit, and I was feeling ok the next morning, I went ahead with the surgery. It went well and I was sent home the same day to recover. I was still constipated and the following day, began vomiting and started with the worse pain I'd ever felt in my life. (Side note: I am disabled with permanent nerve damage in my neck and can no longer work.....and I have had two neck surgeries (among MANY others). So, I feel like I've experienced pain unlike most people have.) The pain on that day got so bad, I could not get up off of the bathroom floor and ended up calling 911. I was left on a gurney in the ER hallway for hours screaming in pain. The EMTs decided that since I had had surgery the day prior, that was what was causing my pain instead of letting me see a doctor right away. When I finally got to see one, the CT scan he ordered scared him so much that he immediately called one of the doctors in my bariatiic practice (of whom he was a friend) and sent me 45 minutes away to another hospital via ambulance for emergency surgery. I had an obstruction that was so severe, my small intestine had become necrotic. The doctor told me a couple of days later, if I had arrived at the hospital an hour later, I would be dead. After a miserable six day stay in the hospital, I was sent home to recover, finally able to eat somewhat normal food again! For the next couple of months, I stayed full of fluid to the tune of not being able to get in my clothes. I was also still expierencing constipaation. About two months later, I gained 20lbs in a three week period. I was devastated but was comforted by my surgeon who was certain the weight gain was a symptom of the consipation. Regardless, going up from a size 8 to a 12 put me even deeper than my normal level of depression (related to self esteem issues, family issues, etc). I started on a journey of doctor visits, medications and other "remedies" for this problem I was having. I even ended up giving myself daily injections of a prescription laxative that threw me into the Medicare donut hole to the tune of $2000 for 60 days of medicine. During all of this, my surgeon even did a laparoscopy to make sure everything was functioning properly. He did say the other doctor had repaired my intestine during the emergency surgery but made it more of a loop DS so, he put it back the way he did it for my DS. With all these things, my bowels finally started moving again and I was able to back off from the injections. I did not, however, lose any weight. In July, I had another plastic procedure to remove the excess skin from my thighs and back. After a very long and painful recovery (infections not to be believed), I actually, despite having a great deal of tissue removed, had GAINED more weight. Another 10 pounds! That eventually came off and I got down to the 20-25 lbs above my "settled" weight. BUT, despite exploring EVERY avenue, could not lose any more weight. I was even seeing other doctors to explore things like hormones, etc that could be keeping me from losing the weight. It was almost like this was my new settled weight. NOT acceptable to me.....not after knowing what it's like to wear a size 8 after being overweight since age 5.....forget the entire wardrobe I now have and cannot wear! I finally went back to see my surgeon a few weeks ago and he did an x-ray that showed that my stomach was a bit larger than most of his DS patients at my stage and since I have continued to suffer with GERDS, set me up with a procedure they dubbed a "partial gastrectomy". He essentially, stapled my stomach to make it smaller, thereby reducing the volume in my stomach giving food less time to become acidic and travel back up the esophagus. I had surgery on Monday. Came home the next day. He told me I would not have to follow the same prolonged diet as when I had my DS but could do things in 3 day increments (3 days of clear liquids, 3 days of full liquids, 3 days of puréed food, etc). I am swollen again. I am wearing my jogging pants instead of anything that will restrict my swollen stomach. My weight is the same (175 lbs)....which I know consists of some water weight from the swelling....I DEFINELTY feel a difference with the volume I can take in. And, I have actually experienced some vomiting if I overfill with fluid, which rarely happened to me before (and not so close to my DS). I am just having THE HARDEST time consuming liquids only. I've allowed myself to migrate to the puréed food stage a couple of days early and have kept things down fine. I just wonder how long I really need to wait to eat regular food again. I mean, this ain't my stomach's first rodeo, if ya know what I mean! Surgery was 6 days ago. Yesterday I weighed 175.6 and this morning I was 177.2. I know it's fluid but I guess I expected something to show for the surgery I went through. Was this all in vain? Am I going to have to accept that I will be in a size 12 from now on? Just wondering if there was anyone else out there that had gone through a similar experience and came out on the other end and what that result was.

Anyone willing to share a similar experience will be greatly appreciated! However, NO JUDGEMENT PLEASE. I do suffer with depression and have more stress right now than I care to admit (outside of the whole weight situation). Thank you if you took the time to read this far! I'm glad to have a forum I can now refer to if I have questions or issues and, perhaps even make a few new friends!

~W
 
Sounds like you have been thru the ringer. I looked at your profile to see who was your surgeon and can understand not wanting to mention the name. If the surgeon is known as a less than stellar surgeon, there may be legal considerations in not publishing that.

I understand Medicare limitations but it is possible that you need more expert help and at your level of issues there are only two I would even begin to suggest. Dr. Keshishian in California and Dr. Rabin in California and I don't know if either one accepts Medicare.
 
The ringer? You don't know the half of it! lol I could write a book honestly, I'm not blaming my surgeon. I really love my doctor. Guess I just didn't want to broadcast it. But I guess there's no reason not to say...it's Dr. James Redmann. I think I just am one of those people that, if it's going to happen to someone, it's gonna be me! I just keep praying beyond hope that everything starts working again and I get back down to my safe 155lbs. All prayers welcome! And, thanks for the recommendations. I wish I could afford to even consider that. But that's life!
 
The ringer? You don't know the half of it! lol I could write a book honestly, I'm not blaming my surgeon. I really love my doctor. Guess I just didn't want to broadcast it. But I guess there's no reason not to say...it's Dr. James Redmann. I think I just am one of those people that, if it's going to happen to someone, it's gonna be me! I just keep praying beyond hope that everything starts working again and I get back down to my safe 155lbs. All prayers welcome! And, thanks for the recommendations. I wish I could afford to even consider that. But that's life!
Honestly, I have never heard Redmann's name as a DS surgeon in the over 6 years I have been on many barbaric forums or FB groups. Where is he located?
 
One thing to do is gather all your operative reports. You need them anyway cause you may move, your surgeon may retire or die, etc. And you have a legal right to them. If you need help reading them, there are people here who can help you decipher them.
 
You need ALL of your operative reports to see what kind of mishmash of surgery you have been left with. It sounds like someone took your sleeve and turned it into a pouch? And your two anastomosis DS has been reconstructed into a SADI/LoopDS???

Some bounceback - 15-25% - from lowest weight is essentially to be expected, without total devotion to diet and exercise, for most DSers. But I sure can't tell if you're a DSer anymore.
 
Thank you. My surgeon is pretty young and the chances of a move are pretty slim. New Orleans natives RARELY leave. Having said that, at this point, the doctors at the practice I currently see are actually very well known in the south east and are pretty respected. As I said earlier, if something is going to happen, you can bet it's going to happen to me! The surgery last week was number 34 or 35, I think (I'm 45). Permanent nerve damage is the cause for my disability. I spend about 80% of my life in my bed. So, I actually lost all my weight unable to exercise. It's not really an option as my condition will never be any better. My kids are 13 & 9 so I do push myself to do things to try and create some normalcy for them but often spend several days in bed recovering from a single outing. I get what you're saying about the bounce back but, honestly, that is still not helping me get over the drawers and closet full of size 8 clothes that I can't get in to. It's not something I can simply accept. You can call me crazy but, when he went in this week, I was really hoping he would shorten the intestine more so I would absorb even less. At this point, I almost wish I had the problem of not being able to stop losing. Not me, though....I should be so freakin lucky!!! He made the stomach smaller because it had expanded some. And, the way I understand it, when he fixed my intestine last spring, it was simply putting it back to what it was when he did my DS. So, technically, I should be exactly where I was when he did my original surgery. I am just not following the progression of the diet as I did then. I know NO ONE could have gone through exactly what I have. I guess I was just looking for anyone that experienced anything remotely similar and ended up with a happy ending, if you know what I mean :)
 
Wow! Sorry for all you've gone through. I'm another frequent flyer at the ER and I swear my health insurance staff has my picture on a dart board. I know this leads to skepticism among the "kids" that staff the ER. I think you have to give yourself a break about weight for a few months until you heal and find out what shape your guts are in. You offer an important lesson to newbies that having DS is not the end of the struggle with metabolism for some people, to pin your surgeon down before surgery about exactly what he plans to do, and to not assume you will stay at your lowest weight. I wish I had waited to buy some expensive clothes at my lowest weight, and people can learn from your experience with that. Give yourself a break, don't be a slave to the scale, and see what happens in the next month or two. Take care!
 
Welcome to the group Wendy. I'm sorry for your struggles it's god you found us.

Regardless of how you feel about your Dr you need your reports. It's not a reflection on your Dr. it's a standard request.

I do understand about the size thing. I'm battling that right now too. I got down to a 0/2 now at 6 and up 16 pounds from my lowest weight. I was not healthy but I am now. I try to put in it in perspective at least I'm not a 24 again. And I feel physically better.

Give it some time and a size 12 is not overweight but the size of an average female.

Take good care
 

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