[THIS IS A PLACE HOLDER FOR A GREAT BOWEL OBSTRUCTION POST THAT SOMEONE ELSE WROTE]
In addition to this, I wrote the following post several months ago (I think just writing it was therapeutic - I never had another bout, but this information could help someone else.)
I would like to post an email I wrote to my surgeon, and his response, and ask if any of you who had a bowel obstruction had any preliminary symptoms like mine, to give me some idea of whether YOU would have gone in and had the CT scan sooner, knowing what you know now.
My email:
I have been having occasional issues – becoming more frequent for the last 18 months or so, now happening maybe 2-3 times/month – that are developing into a kind of pattern. I don’t know what is setting them off, nor whether what I am feeling is cause or effect – not even sure it is DS-related, though I assume it likely is.
I will bloat up rather quickly, not related to a food that I can identify as the possible culprit. And then the bloat starts to hurt in a very specific place, left side, approximately where my left ovary is (I am several years postmenopausal). This is followed by spasms of very painful cramping that takes my breath away and makes me yelp in pain (8.5 on a scale of 10) that last 2-3 minutes, followed eventually by very very painful passing of gas and pooping (painful in the spot where the spasms are occurring, not my rectum or anus). The episodes last 30-60 min, and leave my abdomen sore for a day or so. I am not constipated, and my poops at worst are formed but relatively soft – never hard.
I’m wondering if I’m developing adhesions/intermittent bowel obstruction/intussusception in a specific place? If so, is there anything that can be done proactively to diagnose and if necessary treat it BEFORE it becomes a medical emergency? I have read that these need to be diagnosed by CT WHILE an episode is going on, and they don’t (yet) last long enough to get to an ER, convince someone to do the CT with contrast, etc., so I’m dubious, but I thought I should ask.
My 10 year check up will be in August.
His response:
Thanks in advance - and I hope this thread will be a useful compendium of experiences for others in the future!
Just for future reference for any DSer who needs a CT scan - I asked Rabkin what the CT order should look like, in case I need to go in, in particular for the oral contrast media - I have had oral contrast before my DS, and puked at glass 5 of 8, but when I had a CT at his hospital in ~2004 (I thought I was having a bowel obstruction, but it was just the worst food poisoning ever), they gave me a few little Dixie cups of cranberry flavored medium and it was quite tolerable, even though I was quite ill - his answer was:
As far as the CT goes, it can be done locally but the images and not just the printed report should be sent here to be reviewed. The CT would be an abdominal and pelvic CT with IV and PO contrast (baratric protocol: 250 cc of PO contrast instead of the routine liter!)
In case anyone needs to know what to demand if they end up in the ER.
In addition to this, I wrote the following post several months ago (I think just writing it was therapeutic - I never had another bout, but this information could help someone else.)
I would like to post an email I wrote to my surgeon, and his response, and ask if any of you who had a bowel obstruction had any preliminary symptoms like mine, to give me some idea of whether YOU would have gone in and had the CT scan sooner, knowing what you know now.
My email:
I have been having occasional issues – becoming more frequent for the last 18 months or so, now happening maybe 2-3 times/month – that are developing into a kind of pattern. I don’t know what is setting them off, nor whether what I am feeling is cause or effect – not even sure it is DS-related, though I assume it likely is.
I will bloat up rather quickly, not related to a food that I can identify as the possible culprit. And then the bloat starts to hurt in a very specific place, left side, approximately where my left ovary is (I am several years postmenopausal). This is followed by spasms of very painful cramping that takes my breath away and makes me yelp in pain (8.5 on a scale of 10) that last 2-3 minutes, followed eventually by very very painful passing of gas and pooping (painful in the spot where the spasms are occurring, not my rectum or anus). The episodes last 30-60 min, and leave my abdomen sore for a day or so. I am not constipated, and my poops at worst are formed but relatively soft – never hard.
I’m wondering if I’m developing adhesions/intermittent bowel obstruction/intussusception in a specific place? If so, is there anything that can be done proactively to diagnose and if necessary treat it BEFORE it becomes a medical emergency? I have read that these need to be diagnosed by CT WHILE an episode is going on, and they don’t (yet) last long enough to get to an ER, convince someone to do the CT with contrast, etc., so I’m dubious, but I thought I should ask.
My 10 year check up will be in August.
His response:
I'd probably go ahead and get an abd/pelvic CT scan with PO and IV contrast at some point as a baseline...it may even show something (doubtful though.) Certainly if the symptoms persist long enough to get to an ER and have an emergent scan, that would be the thing to do (but let's hope that that doesn't happen!) Aside from that, I don't have any other suggestions aside from coming in for an exam as your 2012 labs look great and you haven't identified any trigger food or activity to implicate.
I don't want to get irradiated for no reason - the "doubtful though" has me thinking I need more reason than that. But for those of you who have had a bowel obstruction, did you have prodromal symptoms like I'm having? Or did it just happen out of the blue?
Thanks in advance - and I hope this thread will be a useful compendium of experiences for others in the future!
Just for future reference for any DSer who needs a CT scan - I asked Rabkin what the CT order should look like, in case I need to go in, in particular for the oral contrast media - I have had oral contrast before my DS, and puked at glass 5 of 8, but when I had a CT at his hospital in ~2004 (I thought I was having a bowel obstruction, but it was just the worst food poisoning ever), they gave me a few little Dixie cups of cranberry flavored medium and it was quite tolerable, even though I was quite ill - his answer was:
As far as the CT goes, it can be done locally but the images and not just the printed report should be sent here to be reviewed. The CT would be an abdominal and pelvic CT with IV and PO contrast (baratric protocol: 250 cc of PO contrast instead of the routine liter!)
In case anyone needs to know what to demand if they end up in the ER.