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  1. Patti Lieb

    Iron infusion levels

    I finished 2 doses of iron infusions this month. My ferritin was at 9. I was tired and couldn’t stay awake. I called my insurance company and they found a hematologistfor me. She had no problem ordering the infusions. The iron was Feraheme.
  2. Patti Lieb

    Iron infusion levels

    I had my first iron infusion last week and will have the 2nd one tomorrow to complete the treatment of Feraheme. My ferritin was at a 9! I had to find a hematologist myself since my Internist recommended a holistic doctor to perform an infusion and he didn’t take insurance. Needless to say I...
  3. Patti Lieb

    Hello Friends

    Well you are super qualified to comment. I appreciate your input Diana. I’ve been on all the boards. This was a new one for me. Glad I joined. Can you send me a copy of your vitamins and especially the brand names for the dry ADEKs? I could use your help to review some of them. I am...
  4. Patti Lieb

    Hello Friends

    Dr. Raul Rosenthal is head of Bariatrics for the Cleveland Clinic in Weston FL and Head of Surgery at the same facility for all disciplines. I hardly think he does not have good reason to have me on Creon, the single pharmacy medication he has recommended to me. What is your expertise in this...
  5. Patti Lieb

    Hello Friends

    I agree. However I always hand the nurse in the room the list of vitamins and meds and assume that she and the doctor both look at my maladies and my list. Oh dear. The bariatric doctor who works with DS patients prescribed Creon. He said it’s important for pancreas enzymes to treat...
  6. Patti Lieb

    Hello Friends

    By the way I am feeling well except for the blood issues. :cool:
  7. Patti Lieb

    Hello Friends

    Dry vitamins are so expensive. Which ones do you use? I always check portion size. Right now using Jarrow brand Bone - 3 per serving plus I add to that. I’ve used zinc before. It’s in range now so I stopped. I will send you the medications I take daily. I’m a pill-machine! Novolog 38-50...
  8. Patti Lieb

    Hello Friends

    These are the vitamins I’m taking this week. I change brands frequently to see if the changes make a difference. Since I’m diabetic I check my blood work 4x yearly. :rolleyes: Vitamins AM PM BRAND Alpha Lipoic acid 200 mg 1...
  9. Patti Lieb

    Iron infusion levels

  10. Patti Lieb

    Hello Friends

    I’m 74 yrs young - a 14-year-out DS veteran currently keeping up on new findings for us DS peeps. My surgeon was Dr. Marchesini in Curitiba Brazil. I’m a diabetic on an insulin pump so have dietary needs in addition to malnutrition. Can be complex. This month I had my first iron infusion with...
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